Kylee Rose

I have a very special little lady in my life. She is almost 4 and you have probably seen several pictures of her on my Facebook, Instagram, and my website, and blog. Last year I had a photography assignment for one of my last classes at Wilmington University and Kylee was the star. It was a photojournalism class, and the assignment was to tell a story using only images.

Kylee has Cystic Fibrosis and Spinal Muscular Atrophy. She is an incredible little girl, tough as nails and honestly a huge inspiration for me. She’s very creative and has a great imagination… but she deals with a lot on a day-to-day basis that most children don’t have to. Regardless, she is full of smiles, funny stories and tons of love.

Here are the final images I used to tell Kylee’s story. “A day in the life of CF & SMA for a toddler”. These images were taken over a period of several days last June (2014). It’s crazy how grown up she looks now and it’s only been about 9 months!